2013 Hardwig Family Scramble Fore Sarah
The community is invited to participate in the 2013 Hardwig Family Scramble Fore Sarah golf tournament benefiting the Foundation for Retinal Research and the Lighthouse of Collier will be held Sunday, Dec. 8 at Tiburon Golf Club, 2620 Tiburon Drive in Naples. Sarah Hardwig was diagnosed with Leber’s Congenital Amaurosis. LCA is a rare genetic eye disorder that leads to retinal dysfunction and visual impairment. In the last few years, much progress has been made in understanding the physical characteristics and progression of different types of LCA, as well as the gene mutations causing the disease process. The hope is someday researchers will be instrumental in finding a cure through gene therapy, pharmaceuticals, prosthetics or transplants. Registration begins at 11 a.m., lunch will be available at 11:30 a.m. and the four-person scramble shot gun start is at 12:30 p.m. An award ceremony will be held immediately following the benefit tournament. The entry fee, $150 per person, includes golf, lunch, prizes and a raffle. To register, sponsor or donate, visit www.scrambleforesarah.kintera.org. The Foundation for Retinal Research and Lighthouse of Collier is committed to finding treatments and cures for retinal degenerative diseases and supporting the lives of affected families. The mission of the Lighthouse of Collier is to promote the development, implementation and ongoing evaluation of programs and services which foster independence and enhance the quality of life for the blind, visually impaired and their caregivers. The Foundation for Retinal Research was founded in 1998 at a time when very little was known or published about Leber’s Congenital Amaurosis. Families affected by Leber’s Congenital Amaurosis had a difficult time acquiring information and making connections to help them understand the eye disorder. The Foundation for Retinal Research has bridged the gap between families and researchers. Leber’s Congenital Amaurosis is a rare, hereditary disorder that leads to retinal dysfunction and visual impairment at an early age – often from birth. Of all the retinal degenerations, LCA has the earliest age of onset and can be the most severe. LCA bears the name of Dr. Theodore Leber who first described the condition. The term amaurosis refers to any condition of blindness or marked loss of vision, especially loss of vision in which there is little or no change in the appearance of the eye itself. LCA is sometimes confused with another condition termed Leber’s Hereditary Optic Neuropathy that also leads to visual impairment. However, LCA is a separate and distinct disease. As the only Center for Blindness and Vision Loss in Collier County, Lighthouse of Collier needs to help the estimated 14,000 local children and adults become independent. In May 2009, Lighthouse of Collier, Inc., Center for Blindness and Vision Loss was established as a Florida Not-For-Profit Corporation. In August 2009, Lighthouse of Collier was granted 501(c)(3) status from the IRS. Also in August 2009, office space was donated to Lighthouse of Collier Inc., by Bayfront Inc. The mission of the Lighthouse of Collier is to promote the development, implementation and ongoing evaluation of programs and services which foster independence and enhance the quality of life for the blind, visually impaired and their caregivers.
Tiburon Golf Club
2620 Tiburon Drive Naples, Naples, FL 34109